This week, Monday July 21 through the 26th we’ll keep you posted with periodic updates via our Production Diary blog from the Barth Syndrome Foundation conference in Clearwater, Florida.

It will be a busy week of shooting interviews with Barth families, taping clinic sessions as well as the Scientific/Medical and Family conferences that will be held Thursday and Friday. The taped sessions will be part of a DVD that the Barth Syndrome Foundation will make available for families, doctors, and researchers alike, all united in their battle against this rare genetic disorder.

During the week we’ll share what’s happened during the course of the day, the production equipment we’re utilizing and the challenges we’ve overcome.